The Black Hole Project
WHAT IS THE PROJECT?
I was diagnosed with epilepsy when I was 8, it changed my life forever and this project is a body of work exploring that change for me and other people. When I was diagnosed I was told a lot about the medical side of staying alive, but nobody taught us about everything else. I'm trying to disrupt the medical narrative of epilepsy to focus on the emotional, psychological and social impact it has on people.
So far I've created a solo performance about my childhood called "Can You See Into a Black Hole?" which has been performed at Shoreditch Town Hall, Camden People's Theatre and The Holbeck. I'm now about to start on part two, a family show equipping people to have the conversations I never had.
PRODUCTION TRAILER BY: http://www.waynesablesproject.co.uk/
PRODUCTION PHOTOS BY: https://www.timothykelly.co.uk/
PART 1 - THE SOLO SHOW
Tom was going to be the first astronaut from Doncaster until he had an epileptic seizure when he was 8. An entire future was snatched away from him. But now, 16 years later he's here to take it back whatever the cost.
With an original soundtrack made up of interviews with his parents "Can You See Into a Black Hole?" is the story of how his family survived their world collapsing into a black hole.
Originally commissioned by Upstart Theatre for Dare Festival 2018 and now supported by a grant from Arts Council England.
For Purple Day 2019 I made this video which gives theatres and performances spaces three easy tips to make their building more accessible to people with epilepsy.